My dietician has recently sent me a sample of add ins, but I’m a little cautious in trying them as I’m not entirely sure how to use them.

I know you add them into your food, but can you add them to absolutely anything or does it have to be added into some kind of sauce?

She also sent me the Add Ins cookbook along with it, but to be honest most of it really doesn’t appeal to me (it doesn’t help that generally I don’t like low protein products OR tomato based sauces), and I generally don’t have time to make these things. I noticed though that they all seem to have some kind of sauce, into which you put the add ins.

So, my guess is that i can’t just sprinkle them in with my coco pops or on top of my toast and mushrooms (minus the low protein sauce!!)?

Also - I understand they need to be used with food that is the correct temperature.... can someone advise on what is acceptable and what isn’t?

Can someone help please!!!! I’m going overseas soon and obviously add ins would be easier to travel with than lophlex LQ!

Thanks
Kate

I’m going for my Christmas lunch with work today and really I can’t be doing with it. Obviously I’ve had to go for the veggie option which in all honesty isn’t that exciting some roasted pepper concoction!! I’m actually sneaking a few lo-pro bread rolls in with me so I can fill up on the soup!! What would great is PKU restaurant! But I suspect it would be fairly empty as I can’t see most of my colleagues sitting down to a low protein dinner!!

Anyways, for all you PKUers out there, have a great Christmas!

Danno

With the recent pork scare, i am feeling pretty happy and smug at being on the diet. People are amazed when i tell them i have never eaten pork or meat. So many food scares in recent year from pork, beef, chicken. Its nice to think i dont have to rely on meat and that no animals have been harmed in the production of my food.
Mazza

I have no idea. A few years ago I asked my dietitian, and her answer was from a dietitians point of view...which was just dont drink it, but if you do make sure it’s only small amounts, but no beer.

Of coarse when I was a teen I had a few, but because I didn’t get a straight answer I just drank what I felt like.

I found I got very sick easily! But to this day I dont know what the better option is.

Luckily I am a non drinker, as I find all alcohol tastes really bitter anyway.

What are your thoughts on alcohol on the pku diet. Do you think we get sicker or have worse hangovers than non pku people, and do you drink alcohol?

Any ideas would be appreciated

I noticed in the last newsletter that there were some interesting Halloween recipes, are there any good recipes for Christmas that I should start considering?

SophiesDad

I have a bit of a random question, is aspartame known by another name in Europe? I’m going skiing next week in Austria and need to know what they might refer to it as? Is Austrian much different to German?

Hope someone can help

Sally

This is my first time on this site, my name is Sharon, my son lee is 3 and has PKU, he is such a fussy eater which makes things so hard because of the restricted diet.  has anyone gone through this??  He wont try new things at all.

I take my low-pro bread to work with me and I ask the cafe near my work (owned by a close friend) to toast my two slices of Low protein bread and put lettuce, carrots, beetroot, tomato, tomato sauce/ketchup, salt and pepper. I call it my hamburger without meat! I also use homemade tomato relish which is always nice with lettuce.

I’d like a few more ideas but obviously I’m pretty restricted in what I can have.

I’ve always wondered exactly what others w/ PKU eat on a dialy basis?

I’m getting better at controlling my diet. I have planned menues I created myself.
To get the calories my body needs & maintain my phe levels. My most recent phe level was 4.4
I expect that to go down even lower. I have classical PKU my level started at 27 in Aug08

A typical day on my PKU diet consists of -( me baking biscuits daily- I usually bake 5 days in advance
(6 biscuits total have 42mg of phe) I need to get 6 packets of Loflex orange flavored in me dialy-
which was increased from 5 packets.

I have 5 -6 snacks a day- minumun snack consists of at least 1 packet of Loflex orange flavored & 1 biscuit- then I
add some fruit-, Strawberries, peaches, apricots, or applesauce, tang I have 2 glasses a day............
all & all that’s my diet I eat approx. every 3 hours- if I wake late I double up on formula packets to get it all in. 
It works out fine. My levels are consistently low. As my diet stays the same .......
but remains interesting enough for me; as the biscuits are filling..... & I love fruit. ....

I usually stay around 90-100mg phe a day. It’s not accidental but deliberate.

Now what’s your routine?
________________________________________________
Oh & BTW Hi everyone my name is Cheryl- I have Classical PKU
was on the pku diet for the first 6 years of my life; recentlly
made the change to return to the pku diet for life on 10-29-08
I look forward to getting to know everyone better.