October 6, 2008

Cows Milk - Allergy or intolerance?

By P. Crane

There is often great confusion regarding cow’s milk allergy (CMA) and Lactose Intolerance, with the terms often used interchangeably despite both being separate disorders and very distinct. Read the rest of this entry »

Topics: Thoughts on Cows Milk Allergy | No Comments »

October 6, 2008

Ketogenic Diet - A History

By Kirk

The Ketogenic diet is not by all means a new treatment. Claims for a dietary treatment of epilepsy are very old, (even before any anticonvulsants were available). Earlier attempts to a diet for epilepsy include: salt restriction, protein restriction, acid-ash diets, water restriction (to provoke dehydration), etc. There is even a reference to fasting as a “cure” for seizures in the Bible. Read the rest of this entry »

Topics: Thoughts on Epilepsy | No Comments »

September 29, 2008

Birmingham Children’s Hospital IMD Games 2008

By SHS Nutrition

On the 28th September 2008, over 100 children converged at the Alexander Stadium, Birmingham, to participate in a special day. What made the day so special was that the children participating had all been affected in one way or another, by an Inborn Metabolic Disease. Read the rest of this entry »

Topics: General Nutrition, Thoughts on MSUD, Thoughts on PKU, Thoughts on Tyrosinaemia, metabolic awareness | No Comments »

September 26, 2008

The Importance of Low Protein Cookery Sessions For Parents and Patients

By Caroline

Fun was had by all who attended the SHS Low Protein Living Cookery Sessions and Activity Days throughout July, August and September 2008. In the Republic of Ireland, SHS held a Low Living Cookery Session in Dublin and Waterford, and a Low Protein Living Activity Day in Imaginosity in Dublin. In Northern Ireland, SHS held three Home Delivery Birthday Party Cookery Sessions in Belfast, Omagh and Derry, and one Home Delivery Birthday Party Activity Day in Derry. At the Low Protein Living Cookery Sessions, the SHS chefs ran through some practical quick recipe ideas such as Low Protein Bread, Low Protein Cakes, Lasagne, Quick and Easy Pizzas, Bruchetta, Garlic bread and Pasta Salads.

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Topics: metabolic awareness | No Comments »

September 10, 2008

Low Protein Cooking

By Alan S

The Nutrition and Dietetic department at the Royal Hospital for Sick Children (Yorkhill), Glasgow, ran another successful Low Protein Cooking session at a local Secondary School. This is the initiative of Barbara Cochrane, the Senior Paediatric Dietitian at the Hospital. She has been doing this for over 18 months now. It is designed to teach individuals new cooking skills  and allow them to network together in an informal way, sharing the experience of bringing up a child (or children) with PKU or other related metabolic diseases.

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September 8, 2008

SSIEM

By Web Help

The SSIEM (Society for the Study of Inborn Errors of Metabolism) put on another great symposium in Lisbon. They do this every year to discuss the latest results of scientific investigation related to Inborn Errors of Metabolism.

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Topics: metabolic awareness | No Comments »

August 27, 2008

Cows milk allergy? Any advice?

By jessica

This is my first blog and I’m doing it to see if anyone has any useful information they can give me. Let me tell you the problem, my 6 year old son was born with to the symptoms he has now.He was diagnosed with a CMA after showing severe colitis when he was about a week old. He was put on Neocate and after a year we weaned him back on cow’s milk. He showed no colitis so they said he’d outgrown the allergy. Read the rest of this entry »

Topics: Thoughts on Cows Milk Allergy, Uncategorized | No Comments »

August 26, 2008

Inherited Metabolic Disorders

By Web Help

Inherited Metabolic Disorders are rare but there are over 1000 known types. Such disorders are treatable with special diets (in some cases drug therapy may also be used).

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Topics: Uncategorized | No Comments »

August 20, 2008

Getting back ‘on diet’ - PKU

By Andrew M

Hi my name is Andrew i am 36 years old, when i was younger i was on a strict diet which was controlled by my mum. When i got to my teens, the doctors wanted me off the diet. When the doctors told me this i said no. I was to used to the diet (low pro) however over the years things started to slip away till i was not on the diet. Read the rest of this entry »

Topics: Diet Tips, General Nutrition, Thoughts on PKU | 1 Comment »

August 19, 2008

PKU and the 3 R’s

By Paul T.

I remember when I first started seeing my dietitian on my return to the diet, sounds a bit like a movie title! PKU and the return of the Diet!!  She explained to me that to help maintain consistently low blood Phe levels, management will involve a three-pronged approach known as the 3 R’s: Record, Restrict, and Replace. I must Record the amount of Phe I consume, Restrict my diet to the right amount of low-Phe foods, and replace those higher-Phe foods with low-Phe alternatives, such as Phe-free protein supplements like Lophlex and Add-ins. I know this type of management is not a cure, but it has been effective in helping to prevent many of the symptoms of PKU in myself such as the drowsiness and bad temper. So remember the 3 R’s: Record, Restrict, and Replace. Read the rest of this entry »

Topics: Diet Tips, General Nutrition, Thoughts on PKU | No Comments »