metabolic awareness

Learning about PKU - One boyfriends odyssey!

Monday, December 1st, 2008

Hi All
My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want [...]

Scottish IMD day- Crieff Hydro Hotel 22/11/08

Tuesday, November 25th, 2008

The beautiful Crieff Hydro Hotel was the location for what was hopefully the first of many meetings specifically aimed at people with inherited metabolic disorders (IMD) as well as their parents and carers. This meeting was to give people who live in Scotland, a chance to meet others who are similarly affected by IMD’s and [...]

Starting the PKU pre-conception diet

Wednesday, October 8th, 2008

It’s been a while since I’ve posted anything, and a lot has happened in the last month and a half. The biggest thing is that I got married! My husband and I had a lovely wedding in Australia and spent three weeks in South East Queensland having our honeymoon.

addthis_url = [...]

Birmingham Children’s Hospital IMD Games 2008

Monday, September 29th, 2008

On the 28th September 2008, over 100 children converged at the Alexander Stadium, Birmingham, to participate in a special day. What made the day so special was that the children participating had all been affected in one way or another, by an Inborn Metabolic Disease.

addthis_url = ‘http%3A%2F%2Fwww.shs-nutrition.com%2Fblog%2F2008%2F09%2F29%2Fbirmingham-childrens-hospital-imd-games-2008%2F’;
addthis_title [...]

The Importance of Low Protein Cookery Sessions For Parents and Patients

Friday, September 26th, 2008

Fun was had by all who attended the SHS Low Protein Living Cookery Sessions and Activity Days throughout July, August and September 2008. In the Republic of Ireland, SHS held a Low Living Cookery Session in Dublin and Waterford, and a Low Protein Living Activity Day in Imaginosity in Dublin. In Northern Ireland, SHS held [...]

Low Protein Cooking

Wednesday, September 10th, 2008

The Nutrition and Dietetic department at the Royal Hospital for Sick Children (Yorkhill), Glasgow, ran another successful Low Protein Cooking session at a local Secondary School. This is the initiative of Barbara Cochrane, the Senior Paediatric Dietitian at the Hospital. She has been doing this for over 18 months now. It is designed to teach [...]

SSIEM

Monday, September 8th, 2008

The SSIEM (Society for the Study of Inborn Errors of Metabolism) put on another great symposium in Lisbon. They do this every year to discuss the latest results of scientific investigation related to Inborn Errors of Metabolism.

addthis_url = ‘http%3A%2F%2Fwww.shs-nutrition.com%2Fblog%2F2008%2F09%2F08%2Fssiem%2F’;
addthis_title = ‘SSIEM’;
addthis_pub = [...]