General Nutrition

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Learning about PKU - One boyfriends odyssey!

Monday, December 1st, 2008

Hi All
My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want [...]

Nutricia Ketogenic Diet Information Evening - 24/11/08

Friday, November 28th, 2008

Nutricia hosted a ketogenic diet information evening and cookery session at the Cooks Academy in Dun Laoighre on the 24th of November.
The event was filled to capacity with a range of Health Care Professionals attending including, Dietitians, Clinical Nurse Specialists, a Consultant Neurologist and Diet Chefs. Mr. Kevin Rafferty, a dietitian from Nutricia Liverpool presented [...]

Scottish IMD day- Crieff Hydro Hotel 22/11/08

Tuesday, November 25th, 2008

The beautiful Crieff Hydro Hotel was the location for what was hopefully the first of many meetings specifically aimed at people with inherited metabolic disorders (IMD) as well as their parents and carers. This meeting was to give people who live in Scotland, a chance to meet others who are similarly affected by IMD’s and [...]

Multiple Food Protein Intolerance - What is it?

Monday, November 17th, 2008

There are many misconceptions surrounding food allergies, often people have an intolerance rather than an allergy itself. A food allergy is an adverse clinical reaction to food due to any type of abnormal immune response to food protein.

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Birmingham Children’s Hospital IMD Games 2008

Monday, September 29th, 2008

On the 28th September 2008, over 100 children converged at the Alexander Stadium, Birmingham, to participate in a special day. What made the day so special was that the children participating had all been affected in one way or another, by an Inborn Metabolic Disease.

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Getting back ‘on diet’ - PKU

Wednesday, August 20th, 2008

Hi my name is Andrew i am 36 years old, when i was younger i was on a strict diet which was controlled by my mum. When i got to my teens, the doctors wanted me off the diet. When the doctors told me this i said no. I was to used to the diet (low pro) [...]

PKU and the 3 R’s

Tuesday, August 19th, 2008

I remember when I first started seeing my dietitian on my return to the diet, sounds a bit like a movie title! PKU and the return of the Diet!!  She explained to me that to help maintain consistently low blood Phe levels, management will involve a three-pronged approach known as the 3 R’s: Record, Restrict, and Replace. I [...]

Crohn’s and Jewish Ancestry

Monday, August 11th, 2008

I’ve often wondered (as I’m sure many people with any sickness have) why me? I found this article the other day while doing some online research. I am of Ashkenazi Jewish descent (my grandparents fled Austria in 1940). I found it really interesting, and strange, how some people from a certain area or of a certain background [...]

The trials and tribulations of PKU… or is it just me?

Monday, August 4th, 2008

It never ceases to amaze me how up and down living with the PKU diet can be. I’m the first to admit that for me every day is a struggle. It hasn’t really been an automatic lifestyle in… well… I can’t remember how long. Not to say that that’s acceptable, of course. It’s not, and [...]

Life & Living with PKU

Friday, July 25th, 2008

Well, I’m not sure how to start off, so forgive me if this beginning is a little bit rough! As I’m hoping to start trying for a baby soon, my intention is that this blog will follow my journey through the preconception diet and maternal PKU, but as it’s my first blog post, I suppose [...]

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