December 29, 2008

Travelling with Crohn’s

By Will C

At this time of year people travel far and wide to visit friends and families and although Crohn’s Disease is a difficult disorder, you should not keep yourself from living the best life possible because you suffer from this disorder. You should continue in your life as you would without Crohn’s, although a few more precautions may be necessary when traveling, this will ensure a smooth and enjoyable trip. Below is just a little bit of advice. If you are planning a big trip, speak to your local doctor first.  Read the rest of this entry »

Topics: Uncategorized | No Comments »

December 1, 2008

Learning about PKU - One boyfriends odyssey!

By Max

Hi All

My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want to put across the other side of it. Read the rest of this entry »

Topics: General Nutrition, Thoughts on PKU, Uncategorized, metabolic awareness | No Comments »

November 28, 2008

Nutricia Ketogenic Diet Information Evening - 24/11/08

By SHS Nutrition

Nutricia hosted a ketogenic diet information evening and cookery session at the Cooks Academy in Dun Laoighre on the 24^th of November.

The event was filled to capacity with a range of Health Care Professionals attending including, Dietitians, Clinical Nurse Specialists, a Consultant Neurologist and Diet Chefs. Mr. Kevin Rafferty, a dietitian from Nutricia Liverpool presented on “Nutritional therapy as a standard part of epilepsy care”. Read the rest of this entry »

Topics: General Nutrition, Thoughts on Epilepsy | No Comments »

November 25, 2008

Scottish IMD day- Crieff Hydro Hotel 22/11/08

By SHS Nutrition

The beautiful Crieff Hydro Hotel was the location for what was hopefully the first of many meetings specifically aimed at people with inherited metabolic disorders (IMD) as well as their parents and carers. This meeting was to give people who live in Scotland, a chance to meet others who are similarly affected by IMD’s and SHS International was delighted to support this event. Read the rest of this entry »

Topics: Diet Tips, General Nutrition, Thoughts on MSUD, Thoughts on PKU, metabolic awareness | No Comments »

November 17, 2008

Multiple Food Protein Intolerance - What is it?

By P. Crane

There are many misconceptions surrounding food allergies, often people have an intolerance rather than an allergy itself. A food allergy is an adverse clinical reaction to food due to any type of abnormal immune response to food protein. Read the rest of this entry »

Topics: Diet Tips, General Nutrition, Thoughts on Cows Milk Allergy | 2 Comments »

November 10, 2008

Crohn’s: Fight it with Diet

By SHS Nutrition

An interesting article recently appeared in the UK based newspaper the ‘Mail on Sunday’ regarding the treatment of Crohn’s disease with diet rather than drugs. The article centres on the experiences of one man, John Maffioli.

John first fell ill at 19, but he just attributed it to the excesses of his life as a university student. Six months of acute stomach cramps later, he had lost almost two stone and was suffering extreme fatigue. Read the rest of this entry »

Topics: Crohn's Disease, Diet Tips | No Comments »

November 5, 2008

The life of Brugt Warnar with epilepsy.

By B. Warnar

My name is Brugt Warner and this is the story of me living with epilepsy. I was born on the 18th February 1943. You can see a copy of my birth certificate here:

Read the rest of this entry »

Topics: Thoughts on Epilepsy | 1 Comment »

October 14, 2008

The Ketogenic Diet - The 1950’s & Now

By SHS Nutrition

A meeting took place in Holland last week concerning the use of the Ketogenic Diet. The Ketogenic Diet is re-emerging as a more acceptable treatment for paediatric epilepsy as parents become more and more concerned about the effects of epilepsy drugs on their children, as well as the obvious benefits of following the Ketogenic Diet. Read the rest of this entry »

Topics: Thoughts on Epilepsy | No Comments »

October 13, 2008

PKU, PKU, PKU

By AngelaR

When Jeff and I got married we knew nothing about PKU. Even during the first two years of us building a home together we were oblivious about this Metabolic Disorder. We found out all about it with a shock when we had our first child. Little did we know that we were in fact carriers of this disease. Apparently if you are a carrier, there is a 25 percent chance that your child will end up with PKU.

Read the rest of this entry »

Topics: Thoughts on PKU | No Comments »

October 8, 2008

Starting the PKU pre-conception diet

By KateW

It’s been a while since I’ve posted anything, and a lot has happened in the last month and a half. The biggest thing is that I got married! My husband and I had a lovely wedding in Australia and spent three weeks in South East Queensland having our honeymoon. Read the rest of this entry »

Topics: Thoughts on PKU, metabolic awareness | 1 Comment »